World Autism Awareness Day – 2 April 2025

World Autism Awareness Day – 2 April 2025

PsySSA Commemorates World Autism Awareness Day

2 April 2025

Beyond awareness: Fostering true acceptance of autistic individuals

By: PsySSA’s Division for Research and Methodology

On 2 April, World Autism Awareness Day serves as a global reminder to foster a deeper understanding of autism (World Autism Awareness Day | Autism Speaks, n.d.). However, awareness alone is not enough. Autistic individuals continue to face systemic barriers in education, employment, and healthcare – barriers that persist because society has been slow to move from awareness to genuine acceptance and meaningful inclusion.

The weight of masking and fitting in

For many autistic people, navigating daily life requires masking: they suppress or alter their natural ways of being to conform to neurotypical or non-autistic expectations (Pearson & Rose, 2021). Seers and Hogg (2023) discussed how masking is used as a strategy for social survival rather than mere conformity. One participant in the Seers and Hogg (2023) study describes the relentless strain of masking as follows:

When I think about the mask, I don’t know which bit is the mask, which bit is myself, and which parts of the mask have fused to myself and become indistinguishable from it. It is only in the privacy of my own mind that I allow myself to express what might be the real me. (p. 31)

This highlights the emotional toll of constantly performing neurotypical behaviours simply to be accepted. People with autism often describe masking as physically and emotionally exhausting, leading to burnout, anxiety, and depression (Beck et al., 2024; Lupindo et al., 2023; Seers & Hogg, 2023).

Challenges in healthcare settings

While autistic people experience difficulties navigating educational (Goodall, 2018; Karrit & Coetzee, 2025) and work (Lupindo et al., 2023) spaces, healthcare settings present another significant challenge. Beck et al. (2024) and Øverland et al. (2024) found that participants with autism frequently report feeling misunderstood or dismissed in healthcare settings. Participants in their research articulated a deep need for health care services that validate their experiences rather than pathologise them (Beck et al., 2024).

Moving forward: A call for meaningful change

True acceptance requires more than symbolic gestures: it demands systemic change. Inclusion should not be framed as a favour or accommodation but as a fundamental right that ensures autistic individuals can participate in society without compromising their authenticity (Beck et al., 2024). As expressed by a research participant in Beck et al. (2024), “You’re hurt and people don’t try to understand things from your perspective. It’s like you’re expected to understand things from their perspective, but there’s no effort on the other person’s part.” This lack of reciprocal understanding underscores the urgent need for spaces where autistic individuals are not only heard but actively supported.

Imagine feeling completely alone in a room full of people, constantly suppressing who you are to avoid rejection. For many autistic individuals, this is not an occasional experience but a daily reality. By fostering empathy, embracing neurodiversity, and creating inclusive spaces, we can ensure that autistic people are not just acknowledged but truly accepted and valued.

This World Autism Awareness Day, let’s commit to understanding. Let’s move beyond awareness to create a society where autistic individuals can thrive – not by changing who they are, but by changing how the world sees them.

World Autism Awareness Day

By: PsySSA’s Division of Neuro and Forensic Psychology

Autism Spectrum Disorder (ASD) is defined by the DSM 5-TR as a neurodevelopmental condition characterised by persistent deficits in social communication and social interaction across multiple contexts, alongside restricted, repetitive patterns of behaviour, interests, or activities. While these symptoms are present from early childhood, diagnosis can occur depending on knowledge and access to care at various points in life. These symptoms cause significant impairment in social, occupational, or other important areas of functioning.

Considering the diagnosis occurs along a spectrum, no two individuals are alike. The severity of the disorder is determined based on the level of support needed, ranging from requiring minimal support to substantial support. The presentation of ASD can vary greatly between individuals, some may have challenges with communication, social interaction, or sensory processing, while others may have remarkable talents and abilities in areas such as art, music, technology, and more. Some may have intellectual disabilities or language delays, while others may have average or above-average intelligence and advanced language skills.

It is through understanding and acceptance that we can truly appreciate these differences and create inclusive environments where all individuals have the opportunity to reach their full potential. On World Autism Day, we come together to honour and celebrate the unique perspectives, abilities, and strengths of individuals on the autism spectrum. This day serves as an important reminder that autism is not a barrier, but rather a different way of experiencing and interacting with the world. It is an opportunity to recognise the richness of diversity in human experiences, and to break down the stereotypes and misconceptions that often surround autism.

South African organisations like Autism South Africa and Autism Western Cape, along with others work tirelessly to support those with the diagnosis as well as their families, while educating society and breaking down stigma. The Autism Parenting Magazine is also a fantastic resource for parents unsure of where to go next or how to overcome challenges which they are grappling with. Worth noted as well were the professional group discussion videos made by the SASCP division.

As we reflect on this day, let us commit to fostering compassion, respect, and inclusion for all individuals on the autism spectrum. Let us build a world where neurodiversity is celebrated, where people are empowered to be their authentic selves, and where communities come together to support each individual’s journey. By creating spaces of belonging, we enable individuals with autism to thrive, contribute, and lead fulfilling lives.

Together, we can make a world that recognises and values the talents, perspectives, and humanity of every person, regardless of their neurological makeup.

Mental Health Awareness Month: A Neuropsychological Perspective

Mental Health Awareness Month: A Neuropsychological Perspective

Mental Health Awareness Month; October 2024

by Prof T Lazarus on behalf of the PsySSA Division of Neuropsychology and Forensic Psychology.

Mental health is affected by multiple factors, both biological and socio-economic in nature. Communities from disparate social and economic backgrounds are not immune to mental health challenges, and this may occur across the lifespan. With respect to brain changes resulting from disease or trauma, the ensuing mental health changes encompass multiple domains of functioning, including cognitive, emotional, behavioural and social. Far-reaching consequences that extend beyond the patient, impacting personal, interpersonal, family and work activities are often evident. In the case of brain trauma, it is now recognized the injury to brain, even minor in nature, may impact education and work activities, and personal relationships.

The sequelae may be managed with various forms of interventions such as cognitive rehabilitation but persisting difficulties are found years beyond the post-acute recovery period. Apart from trauma, the impact of brain diseases such as stroke leaves residual problems not only in the physical domain (such as weakness of a limb or loss of speech), but in thinking and emotional functioning. More recently, research has suggested that the COVID virus does enter the brain, impacting various domains of functional capacity, leaving patients who had this infection with persisting problems of thinking (commonly referred to as ‘brain fog’) and emotional difficulties (more often depression and anxiety). Neuropsychologists are called upon to determine to what extent functional capacity is affected in long-term COVID conditions. Thus, long-term care is now commonplace for victims of brain injury and disease, with patients experiencing difficulty returning to employment and resuming relationships.

In addition to the clinical implications of brain disease, the potential impact of brain related disorders is becoming more evident in legal matters. Acting impulsively and displaying aggressive or violent behaviours, showing poor judgment in managing self-behaviours in public and private contexts, and the inability to manage one’s personal affairs is common in brain injury and/or disease. In these instances, neuropsychologists possess the training and skills to formally assess patients with brain disease or injury, providing recommendations in regard to individuals’ functional capacity to return to work, ability to manage their personal affairs such as financial matters, as well as investigating whether a brain injury impacted judgment in cases of violent behaviour or instances suggesting poor judgment or insight into their behaviour. With the increasing burden of disease and injury impacting the brain structurally and its functioning, neuropsychologists are well-placed to offer the South African community expertise in identifying brain dysfunction, make diagnoses and management, and offer pertinent opinion on the impact of brain injury and/or disease on behaviour in medicolegal and forensic settings.

WORLD HEAD INJURY AWARENESS DAY 2022

WORLD HEAD INJURY AWARENESS DAY 2022

More Than My Brain Injury

Division of Neuropsychology and Forensic Psychology

Psychological Society of South Africa

World Head Injury Awareness Day is observed annually on the 20th of March. The core purpose of this day is to provide awareness and to educate the public about traumatic head injuries[1]. Another focus is enhancing awareness and knowledge on how to reduce accidents and brain injuries. The day therefore also advocates for the correct usage of various safety equipment (e.g. helmets, seat-belts, etc.) which can prevent or lessen insult to the brain when involved in accidents[2].

Traumatic brain (head) injuries (TBI) are a leading cause of disability and mortality worldwide and a few years ago, the World Health Organization indicated that TBI would surpass many diseases as the major cause of death and disability by the year 2020. Global estimates are that in excess of 10 million people are affected annually by TBI, making this a serious public health concern[3]. In South Africa it is one of the leading causes of disability and most commonly occurs as a result of motor vehicle, bicycle or pedestrian accidents, falls and violence[4]. Notable in terms of the latter are the country’s high levels of gender-based violence which frequently results in TBIs. Sports-related head injuries are also recognised as a risk for TBIs and their associated cognitive and behavioural problems, and the need for post-concussion monitoring is now emphasise. Importantly, about 22% of all injuries sustained in soccer have been identified as TBIs/concussions[5].

The theme for World Head Injury Awareness Day for the 2021 to 2023 campaign is “More Than My Brain Injury”. Survivors of brain injury are often challenged with physical, cognitive, emotional, behavioural and social limitations, severely impacting on life with significant economic consequences[6].

[1] https://www.cdc.gov/traumaticbraininjury/get_the_facts.html

[2] http://www.optimabloem.co.za/head-injury-awareness-day-more-than-my-brain-injury/

[3] Hyder AA, Wunderlich CA, Puvanachandra P, Gururaj G, Kobusingye OC. The impact of traumatic brain injuries: a global perspective. NeuroRehabilitation. 2007;22(5):341-53. PMID: 18162698.

[4] https://www.gov.za/GBV

[5] Levy ML, Kasasbeh, AH, Baird LZ, Amene C, Skeen J  Marshall, L (2011). Concussions in soccer: a current understanding DOI: 10.1016/j.wneu.2011.10.032

[6] Johnson, W.D; & Griswold, D. (2017). Traumatic brain injury: a global challenge. The Lancet Neurology, 16(12), 949-950.